Post by account_disabled on Dec 21, 2023 3:25:17 GMT
Affecting less than one in of the general population in the European Union or fewer than people in the US. Children under the age of five are disproportionately affected they make up of cases of whom will die before the age of five according to one report are born each year with syndromes without a name Swanis. Dealing with a childs medical challenges is hard enough.
But going without a diagnosis opens up a myriad of added challenges for clinicians and families. Thats something Anna Jewitt a clinical nurse specialist for Swan children at the Great Mobile App Development Service Ormond Street Hospital in London knows well. Without an explanation for their childs health parents are left feeling lost and alone. Sometimes despite their concerns caregivers are told their child is normal.
Yet this is often the worst word for a parent with a child with an undiagnosed condition says Jewitt. One difficulty is that most children who present with a symptom do not have a serious disease. Generally its more likely to be something minor or temporary. As a result most parents need reassurance that their child is fine not dozens of laboratory tests and weeks of additional medical investigation.
But going without a diagnosis opens up a myriad of added challenges for clinicians and families. Thats something Anna Jewitt a clinical nurse specialist for Swan children at the Great Mobile App Development Service Ormond Street Hospital in London knows well. Without an explanation for their childs health parents are left feeling lost and alone. Sometimes despite their concerns caregivers are told their child is normal.
Yet this is often the worst word for a parent with a child with an undiagnosed condition says Jewitt. One difficulty is that most children who present with a symptom do not have a serious disease. Generally its more likely to be something minor or temporary. As a result most parents need reassurance that their child is fine not dozens of laboratory tests and weeks of additional medical investigation.